Support materials
We’re here to help navigate life with hypoparathyroidism. By providing the tools for self-advocacy, we empower those living with hypopara to take control of their care and champion a better quality of life.
Support materials
We’re here to help navigate life with hypoparathyroidism. By providing the tools for self-advocacy, we empower those living with hypopara to take control of their care and champion a better quality of life.
Improving understanding of hypoparathyroidism
Seeds of Change aims to support and empower people with hypoparathyroidism (also known as hypopara), so they are ready to advocate for improved care and quality of life.
The materials below are intended to help improve understanding and support patients, their loved ones, caregivers, and healthcare professionals in having meaningful discussions around hypopara care.
Tab 1 content.
Tab 2 content.
Managing the fluctuating symptoms, physical fatigue, and emotional strain of hypopara can make routine activities unpredictable.
Explore the resources below to help you or your loved ones to plan and participate in daily life.
Symptom Butterfly Generator
✓ Share the butterfly with your doctor to support a discussion about your experiences
✓ Share your butterfly on social media to raise awareness and connect with others
June 2026 | GL-COMMPTH-2600065
Hypopara fact sheet
Symptom Diary
✓ Daily symptom capture
✓ A dashboard summary of your entries
June 2026 | GL-COMMPTH-2600050
Click below to download hypoparathyroidism materials
Hypoparathyroidism
Prevalence, symptoms, and impact on quality of life.
Hypoparathyroidism
Prevalence and impact on quality of life.
We’re proud to work alongside Parathyroid UK and the Society for Endocrinology to support those living with hypoparathyroidism. Discover more about each of our partners below.
GL-COMMPTH-2600067 | June 2026